Wednesday, April 8, 2009

Knowing What We Know

I’m back!! Sally was right ~ the JH heads up for “extreme fatigue” was the understatement of last weekend. I had a really busy work day last Friday until mid-day, then just hit the wall like I never imagined. I, seriously, couldn’t even open my eyes or lift my hand! I would ooze out of bed, to the “facilities” then nap on the bathroom floor for a hour or so, then wobble back to the bed or the couch….all weekend. Plus “symptoms” thrown in, so it was another new experience. But that’s behind me now. Whew!

Tomorrow we head up to Johns Hopkins for a “long day” with Robert-the-phlebotomist. Tomorrow blood tests only, off and on, for 11 hours, then back again to JH for more tests Friday morning. But no chemo!! Now here’s something funny. Last weekend I was thinking, “Wow, I can see why they give you a break after 3 weeks of accumulation of the chemicals in your body. The old bod can’t take it.” – but now that my “Break Week” is here I am surprised that I find myself thinking – “No, no…they MUST give me the chemo. I don’t want to go a week without it. I have to keep fighting. What if the cells grow during the ‘off week’? etc etc.”

I know that is silly but I did find myself thinking that. I trust that the doctors know what is best – and as you know, I am not the first through this clinical trial, so the doctors really know the best way to give this treatment. I have confidence I am in good hands. I was reading this wonderful verse from the Psalms and found myself wondering (again) if the author, David, was experiencing the exact same thing that I am b/c once again David certainly hit the mark for my feelings in what he says in his writing --- Isn’t this a great verse from the Psalms?…"I know the Lord is always with me. I will not be shaken, for He is right beside me. No wonder my heart is glad, and I rejoice. My body rests in safety! Ps. 16:8-9”

It’s a lovely week to reflect on resting in Knowing what We Know.

Monday, April 6, 2009

Sleepy girl!


Carol seems to be following the script . . . exactly as written by the wonderful people at Hopkins. They said the "fatigue factor" grows with each chemo treatment, and most patients really feel it after their third treatment. Chemo #3 was Thursday, and Carol was down for the count all weekend. Good thing this coming week is a week off!
So, all you prayer warriors, the prayer is for Carol is to build herself back up with lots of sleep and good nutrition, so as to be ready for the next treatment in a couple of weeks.
Check out Carol "lunching" with her CBS core group at Debbie Tovar's last Monday!
Sally