I’m home! Ahhh, resting lots at the shore, on the screened porch with wonderful fresh air –so thankful to the docs at JH that got me back from that infection. I am still on some big antibiotics (Cipro and something else) so I’m sleeping lots. Also, they infused LOTS of fluid in me to get blood pressure up and fever down, so I came home from the hospital 27 pounds heavier! I told my doctor I look like the Michelin Tire Man with sausage toes! But I have been “draining”, constantly, it seems and soon I will be back to normal. Over the weekend, I was such a baby at the hospital. I was actually afraid to come home, that we would “miss” something (like a fever!) and get me back into the same mess again. There was a certain comfort about having my “vitals” checked every couple hours. But other than the bloating I was okay to come home, but I didn’t want to! They were great, and said, “sure, stay.” But after a day of lying around there, I had a real contentment that it would be just fine to go home and take my own temperature, antibiotics, etc! We are now in charge of me and doing our best to get me well again to get back into the fight!
Now we wait to hear from JH about a couple things: 1.when I go back in to resume chemo. 2. when they do the endoscope to replace the temporary plastic stent in the bile duct that goes from the liver, through the pancreas, to the duodenum with a fatter permanent metal one. (Apparently the infection was caused by “tissue blockage” of the stent they put in the bile duct a few months ago. That backed up and caused the infection.) The emergency plastic stent they put in to relieve to blockage is good for at least 6 weeks and my GI doctor (who is in China at meetings right now and emailed me from there!! Impressive!) is going to schedule me for a permanent replacement (he did the original stent and is fabulous-like the rest of my care team at JH).
Thanks so much for your prayers for me…and thanks for your comments on the blog! I can’t tell you how each one encourages me! I realize that I have friends who are funny, encouraging, uplifting, silly, LOVING, and most of all…thinking and praying for me. I am sorry that I don’t have the energy to answer emails and phone calls, but those comments really are just hugs, hugs, hugs. I know I just have to keep up my part of “us” and not let too many days go by without a blog entry.
SO, other family news! Frank retired after 37 years of the practice of law! (Army JAG; Lockheed; Litton; Northrop Grumman) Yep! He had originally intended to retire on his birthday next March, but moved the date up to July 1st! He is now officially full time Nurse Ratchett and doing a great job at that! Last week his office had a wonderful, very meaningful, going away get-together for him. He came back to the hospital full of stories and comments and things folks had said to him. He was very, very touched. AND he is now the owner of Ping Golf Clubs! Frank has always said he wanted to learn to golf…now he has beautiful clubs and no excuse! Oh….and now he is after me to join him in his golfing adventures. I told him “first things first….I need to get the right outfits if I am going to look cute driving him around in a golf cart!”
Many of you have asked about Chip. Well, we just got an update from our favorite Marine Aviator yesterday. He will NOT be deployed to the Middle East in the next few weeks after all (THAT is a gift to mom! Praise God for that!) but instead he will stay stateside and has been selected as the pilot in his squadron to attend an elite school. (mmmm, proud mom moment!) called WTI. It means he will leave San Diego and will be at school in Arizona for six weeks this Fall (3 weeks academic, 3 weeks flying). He also found out that he was selected for a MEU (Marine Expeditionary Unit – combines troop units and elements from all the different Marine aircraft on one ship. They pick the ‘best of the best’ pilots to go on a ‘float’ and are expedited to hot spots around the globe as needed. Needless to say only a few helicopter pilots are selected, so that’s very cool.) The timing is perfect b/c they don’t ship out until next Spring. It will also enable him to finish all his “Qualifications” as well as his WTI which then makes him one of the senior instructor pilots (I think I have this all right, but then I’m a Mom).
Newlyweds are doing great. Christine back at work, Erik is in for Summer School, teaching Latin to those lucky boys! No word yet on the “on line” photos from the wedding photographer, but I will let you know as soon as her website is up. I bet she got some great photos of the special day! We can’t wait to see them.
Specifics:
Please pray boldly with me that:
- God will heal this cancer while I am off chemo…and for peace of mind for me during this time.
- all the infection will clear out of my system asap
- when I get back on chemo, I selfishly hope it will be the same “no symptoms”/ no growth. (That was wonderful b/c I truly felt as though I was in the maintenance mode)
- God will bless my wonderful husband who is AMAZING in caring for me and just “being there” through the ugly stuff with such grace and love
- Keep the kids safe
Thanks!
Much love to you all,
Carol
